She had one last three days in February and one in July lasting less than 24 hours! During both of those times she had missed her tart cherry for at least three days prior. She takes several supplements every night. But I fully give the Tart Cherry credit for the reduction in fever episodes. Enzymatic Chewable Tart Cherry Ultra ........................0.4g Tart Cherry Skin Concentrate (bottle has serving size set at 3 tablets and 1.2g, but I only give her one). These taste wonderful and have additional benefits. Not only does it block the enzyme that causes inflammation that results in her fevers, but it promotes the body to produce melatonin which helps her sleep better. One of the side effects of PFAPA is weird sleep patterns. If she takes this just after dinner she goes to sleep quickly at bed time and stays asleep, but if I give it to her just before bed she may still wake up in the middle of the night, so timing is everything. Tart cherry is also wonderful for gout which my husband has in his big toe.
Vitafusion Vitamin D ..................................1000 IU gummies (bottle has serving size at 2 gummies and 2000IU, but I only give her one). Studies have shown that children with PFAPA tend to be deficient in vitamin D. Abbie spends a good deal of time outside, either in the pool or on the trampoline during the summer. This is not necessarily true during the winter so as a precaution I have begun to give her one of the vitamin D chewables. You need to be careful because vitamin D is one of the vitamins that you can overdose on. She loves the way these taste and is eager to get these each afternoon.
Schiff Digestive Advantage Probiotic Gummies ...............1 chewable
One of the frequent complaints of children with PFAPA is that their bellies hurt. I've started giving her these in the hopes of helping with her belly complaints. I can't tell you for sure that it is helping with the pain because she has only had two episodes this entire year, but taking probiotics has lots of other benefits such as helping you to stay healthy and not catch any of those nasty bugs that float around during the school year.These boast that they have a 10x better survivability than yogurt and they taste wonderful. It recommends one piece for children 3 and under and two for anyone over the age of four. I may up her dosage to 2 within the next few months.
Green Pasture Blue Ice Royal Butter Oil/ Fermented Cod Liver Oil Blend Gel in Chocolate Cream .........................................1/2 teaspoon (Abbie takes this for her bad teeth...right now she has an abscess and I am hoping to heal it naturally) I thought Chocolate Cream would be a winner, but it tastes really bad and requires a chaser immediately after. Abbie is doing wonderful taking it and doesn't complain, she just makes sure there is a drink waiting before she will take it. I've tried it and agree that it tastes horrible. I had already ordered these before reading reviews. Next time I plan to order the Cinnamon Tingle. Unfortunately it will probably be a while as I ordered two of these. My son is also taking this every night because he has a small cavity on one of his permanent molars. I will let you know after his appointment to get it fixed if this has had any effect on that cavity.
These are the supplements she takes. We have not had to take one single prescription or have an operation and I am very pleased with how she is doing.
She has her next appointment with her infectious disease doctor in October and I can't wait to tell him our results!
If you have any questions or results from using any of these products, feel free to leave a comment. Also feel free to share our story with any of your friends who may have children suffering from PFAPA!